Finding you have a genetic connective tissue disorder in your 30’s kind of sucks. If you’re like me, a lot of preventable damage has already been done and can’t be fixed. If you find out you have EDS or Elher Danlos Syndrome Hypermobility here is a little advice that might help.
The work I’m doing in therapy is in boundaries and lowering my stress levels. My Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and my Cyclic Vomiting Syndrome are exacerbated by stress. This makes controlling my stress levels and body response to stressors is extremely important. My last therapy appointment my therapist asked me to work on an idea
We’re preparing to visit two continents in less than a month. Travel is not always easy with my medical issues and allergies, but we refuse to let that hold us back. One way I deal with my anxiety is making quotes on photos that I’ve taken. I’ve never been to these places, so I had
Many people who know me, know I love people watching, and part of that is reading “Dear …” advice columns. I find they give me others perspectives and help me in situations that come up in my own life. Most of them try to show an empathetic, honest answer for problems about which they are
Friday, Daniel and I were suppose to fly to Washington DC for my cousin Jake’s wedding and some sight-seeing. Instead I woke up in one of my spells, and spent the next twelve hours throwing up and moaning in pain. We had to cancel the entire vacation, I’m still in bed recovering. Sometimes, despite all
I sat down today to pay some of my medical bills, and realized that between the two of us we were over half way to our medical insurance deductible before the end of March. I’m only about half way through PT and Daniel starts his on Monday for his sprained LCL. EDS life I guess…
We’ve been having an absolutely amazing trip so far. After all the walking we did yesterday, today Daniel and I got a late start. We slept in then got ready at a snails pace. We packed KT tape for skiing and hiking but didn’t use any yesterday. Today we were sore from yesterday so we
The original plan was flying out at 6pm Thursday, but I woke in the middle of an episode at 3am. That episode was about 7 hours of intense BS and about 12 or 13 total hours. We realized we weren’t going to make that flight pretty early and Daniel took care of rearranging our flight
Daniel and I are very excited to be going to Colorado for my 37th birthday in just a few days. Planning an adventure with our health issues is a little bit of a challenge, but we’re making it happen because we both want to live bigger. On this trip we’ll be flying into Denver, spending
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