We started our day by walking a few blocks to Olive & Finch for breakfast. Well that’s not entirely true, we started our day trying to figure out how to regulate the water temperature in the shower, Victorian houses are fun. We had fresh squeezed juice, eggs, bacon, and biscuits all soy free. When we […]
The original plan was flying out at 6pm Thursday, but I woke in the middle of an episode at 3am. That episode was about 7 hours of intense BS and about 12 or 13 total hours. We realized we weren’t going to make that flight pretty early and Daniel took care of rearranging our flight
Daniel and I are very excited to be going to Colorado for my 37th birthday in just a few days. Planning an adventure with our health issues is a little bit of a challenge, but we’re making it happen because we both want to live bigger. On this trip we’ll be flying into Denver, spending
Daniel and I had just come in the house from somewhere and we had NPR on the radio keeping Magnus entertained. As we were settling in I caught a few words from the program that was on that day. Those words have been sitting and stewing in my head for several days. Fresh Air’s Terry
First I would like to thank MaddieSharafian on Tumblr for this perfect cartoon. I have for years been using the spoon theory to explain how my energy and pain levels effect me on a day-to-day basis. This cartoon does it more clearly & quickly than I could ever get the spoon theory across to anyone. I absolutely
We love meat loaf. In the past we used 80/20 ground chuck so there was some fat to stick the loaf together, then we added Lipton Onion Soup mix, store-bought bread crumbs, and tomato sauce. With our new soy-free diet, Lipton’s and store-bought bread crumbs were out. Also, tomato can hurt an already sensitive stomach, so we wanted an alternative.
Ehlers-Danlos Syndrome type hypermobility (or hEDS) presents many issues outside the party-trick-worthy bendable joints. This means that beyond my killer Mrs Incredible impression, I have complications above and beyond my joints. hEDS seems to affect my entire body, and each system is affected differently. This means I spend a lot of time and money at
I’m about a month and a half into eliminating soy from my diet to try to fix my stomach. But I half assed it for the first two weeks… I see little to no difference. I’m doing this for 3 month, then I’ll add in another weird thing I can’t remember to eliminate. I’ll do
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