2017

My EDS Careteam

Ehlers-Danlos Syndrome type hypermobility (or hEDS) presents many issues outside the party-trick-worthy bendable joints. This means that beyond my killer Mrs Incredible impression, I have complications above and beyond my joints. hEDS seems to affect my entire body, and each system is affected differently. This means I spend a lot of time and money at

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Ehlers-Danlos Syndrome

I have a genetic disorder that occurs in 1 in 10,000 to 15,000 people. Turns out Daniel does too. Doctors often ask if we met in a support group. It’s called Ehlers-Danlos Syndrome Hypermobility type. This condition is rare (or rarely diagnosed), and many of the symptoms can be lessened with early intervention. I’m hoping

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CMA 2017

I wouldn’t normally write up an adventure for a weekend we spent basically at home, but this weekend was full of too many great stories not to share. Thursday we took a walk and cursed ourselves; we made the mistake of musing to ourselves after our walk that this was the most polite CMA group

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California 2017

We are lucky enough to be required to travel for our work. This year it’s taken us to California twice so far, once in February and once in April. SF to LA In February we started with a week of business in San Francisco and on Friday we boarded the Coastal Starlight Amtrak Train for

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First Anniversary

For our first anniversary we wanted to get away for a quiet week again. The beach house we rented for our honeymoon was already booked so we found another one a little ways further down the island. This beach house was just as perfect, it was even closer to the water! The house was so

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