We started our day by walking a few blocks to Olive & Finch for breakfast. Well that’s not entirely true, we started our day trying to figure out how to regulate the water temperature in the shower, Victorian houses are fun. We had fresh squeezed juice, eggs, bacon, and biscuits all soy free. When we […]
The original plan was flying out at 6pm Thursday, but I woke in the middle of an episode at 3am. That episode was about 7 hours of intense BS and about 12 or 13 total hours. We realized we weren’t going to make that flight pretty early and Daniel took care of rearranging our flight
Daniel and I had just come in the house from somewhere and we had NPR on the radio keeping Magnus entertained. As we were settling in I caught a few words from the program that was on that day. Those words have been sitting and stewing in my head for several days. Fresh Air’s Terry
First I would like to thank MaddieSharafian on Tumblr for this perfect cartoon. I have for years been using the spoon theory to explain how my energy and pain levels effect me on a day-to-day basis. This cartoon does it more clearly & quickly than I could ever get the spoon theory across to anyone. I absolutely
Ehlers-Danlos Syndrome type hypermobility (or hEDS) presents many issues outside the party-trick-worthy bendable joints. This means that beyond my killer Mrs Incredible impression, I have complications above and beyond my joints. hEDS seems to affect my entire body, and each system is affected differently. This means I spend a lot of time and money at
Magnus realized three days after he got skin tags removed that he could use his cone to rub the hip spot. He nearly rubbed it open. Our Tumblr farmer friend gave me the great advice to put a t-shirt on his butt. I remembered his PJs and they’ve worked perfectly.
I have a genetic disorder that occurs in 1 in 10,000 to 15,000 people. Turns out Daniel does too. Doctors often ask if we met in a support group. It’s called Ehlers-Danlos Syndrome Hypermobility type. This condition is rare (or rarely diagnosed), and many of the symptoms can be lessened with early intervention. I’m hoping
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